"Kai does not like all of that "stuff" on him"

Week 3
May 30, 2011


Thank you everyone again for all your support! Adam & I appreciate everyone of you!!

Kai has been having ups and downs, mostly ups. They tried to take him off the conventional ventilator and put him on a Cpap, but after almost 8 hours he really did not like it so they put him back on the conventional ventilator but with a bigger tube along with a bigger feeding tube. 

His feedings are going great. They stopped feedings for a short time the other night so they could give him straight IV fluids so his kidney's would function properly because he was not having a good urine "output". That was corrected and they put him back on milk feeds yesterday. He also had a renal (kidney) ultrasound to check if they are anatomically correct. He has two and he has a good bladder is what they 'kidney doctors' told me today, but they will give me clear results of how his kidneys look tomorrow. 

They started his feeds back at 3ml yesterday and today he was up to 9ml and tomorrow he will probably go up to 12ml and just keep going up from there! 

He is growing and we can tell! Tonight he weighs 2lbs. 12oz, that's really good! And his tummy circumference is measuring normal and his stomach still feels soft and not hard, which is good too. 

His head circumference is about 25cm (growing) but he's growing and getting "older" so his head should be growing as well. They only measure to watch for abnormal growth changes in case the ventricles in his brain swell. 

Hey may need more antibiotics, but we'll find out in a day or two and he had more lasix for his lungs today as well because they are still "wet" and we don't want that. 

Also held him this afternoon for just under an hour, he gets squirmy towards the end sometimes and it's better to lay him down and get him comfortable. We had a nice time though :) 

Side Note: Kirra informed me today that Kai does not like all of that "stuff" on him...she's already looking out for her little brother.