tag:blogger.com,1999:blog-62739656871302167152023-11-16T08:23:29.969-08:00Kilo KaiBorn premature at 25 weeks 5 days, Sunday May 8th 2011 at 9:10am. He weighed 2lbs. 4oz. and measured 12 in. He received critical care at Standford's NICU. He spent a total of 105 days in the hospital until he came home. This is his blog and his journey.
Tags: preemie story, LPCH, born 16 weeks early, 26 weeker, weighed 1 kilo, ROP Stage 3/4, IVH bilateral grade 4 down to grade 2, PDA, reflux, chronic lung diseaseAnonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.comBlogger85125tag:blogger.com,1999:blog-6273965687130216715.post-45106972245972021132012-05-08T07:23:00.000-07:002012-05-08T07:31:13.949-07:00One Year Later<br />
One Year Later<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisD2-bnJto6aKP2M_StbNqkkh7Fcr4icYL8iMP2K1vDAjN6FsUZL0IigFZVRbLmRmsiHEAlkJvEKkKaSpuihKfRqhew0fIkcZKUJndGCeTHgYiCxksTqeY7GiQLRDyeU3pMaZSgEpbuTWS/s1600/kai2.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEisD2-bnJto6aKP2M_StbNqkkh7Fcr4icYL8iMP2K1vDAjN6FsUZL0IigFZVRbLmRmsiHEAlkJvEKkKaSpuihKfRqhew0fIkcZKUJndGCeTHgYiCxksTqeY7GiQLRDyeU3pMaZSgEpbuTWS/s320/kai2.jpg" width="320" /></a><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDlW2H7euYYfxvlELNovyl-NFx-hf2oEqO9cnzVSqINoaOTMU1o-jdfvkcUIwYlnYjrh-Ct9H6zsZG5oiMiBAuVHzVokopmXj8VHACT63Xg8CZCH900rJ69I_zyi7fyzGNOnGoQbdNggyK/s1600/kai3.jpg" imageanchor="1" style="clear: left; display: inline !important; margin-bottom: 1em; margin-right: 1em; text-align: center;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjDlW2H7euYYfxvlELNovyl-NFx-hf2oEqO9cnzVSqINoaOTMU1o-jdfvkcUIwYlnYjrh-Ct9H6zsZG5oiMiBAuVHzVokopmXj8VHACT63Xg8CZCH900rJ69I_zyi7fyzGNOnGoQbdNggyK/s320/kai3.jpg" width="320" /></a></div>
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Here we are one year later celebrating Kai's birth into this world and more importantly his belonging into this world. To say this past year has been a roller coaster is an understatement, it has been much more. Kai's remarkable journey has been uplifting, inspiring, unbelievable, and unforgettable.<br />
He exemplifies what it means to be a fighter in the preemie world. His strength and courage alone were no match for his odds of survival...Kai is a true Miracle.<br />
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Born at 25 weeks and 5 days gestation, weighing 2 pounds and 4 ounces, and only 12 inches long, Kai was born a micro preemie . I find myself asking the same simple question, how did this happen? So simple yet so complex. How is a baby to survive in the womb when amniotic fluid levels have been diminishing since 18 weeks gestation and last 7 more weeks? A huge supply of nutrients are lost, growth of the baby has been inhibited, the ability to move fluidly has been lost, plus much more are all working against the chance of survival. Somehow Kai beat the odds and made it through these early obstacles only to face even more when he arrived in the NICU.<br />
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After just five days of life Adam and I were given a choice--chose to continue life support or chose to discontinue. This came about solely because of the severity of the Intraventricular Hemorrhage (IVH) that occurred on both sides of his brain. We chose to continue without hesitation. That day I will never forget. His birth was not as intense as this day was when we were to make one of the biggest decisions on Kai’s behalf. He made it through the birth so why would we have wanted to take something away from him that he so rightfully earned? Although the doctors said what they had to say and give us statistics, probabilities, and odds, both Adam and I somehow knew that Kai was going to defy all of those and be just fine at the end of this. We knew that he belonged in this world.<br />
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Those days were so scary. Its really hard to go back to those moments and replay them in my head. Everything was on a day-by-day basis and we had no idea what Kai’s future was going to be like, we just knew that he was going to make it through all of this and come out on top.<br />
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Well, Kai conquered his NICU stay and since he has been home, he has exceeded all of our expectations. He could not be any more impressive, pulling out his NG tube, drinking from a bottle, rolling over, sitting up, crawling and much more, all before he has turned one is a big deal! There are times I feel like none of those scary days ever happened. I feel like how could they have when he is doing so well! No matter what would have happened to Kai or what may still happen to Kai, whether it be some sort of disability or what have you, Adam and I will love him no matter what and be so proud of him and his accomplishments no matter how small. But I must say, we are truly blessed and lucky. We were given one of the strongest most brave little boy we have ever met.<br />
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I also want to acknowledge all of his followers who prayed for him and supported our family. Your prayers were heard, your love was received, and your help was greatly appreciated. I don’t know what we would have done without this huge support group.Thank You.<br />
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And a Thank You is deserved to all of the doctors, nurses, and medical staff that cared for Kai. He<br />
was very popular at the hospital during his NICU stay. All of these members of the hospital had Kai’s best interest in mind and cared for him as they would have cared for their own. He had the best of the best looking after him. I will never forget any of you and I look forward to the day Kai can meet and remember all of you as well.<br />
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At the end of his first year, I honestly feel relieved. Adam and I both feel a weight has been lifted and we can put those past struggles behind us now. Kai is a happy little boy and by all means a healthy one too. We haven't taken anything for granted and we are so thankful for his health more than anything!<br />
We look forward to this second year with Kai and the years thereafter. We look forward to all of the things we had talked about when we decided to have a second child and all of the new memories we are going to create.<br />
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Dear Kai,<br />
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You were nothing short of a miracle and the journey of your birth into this world is remarkable. You have changed my life forever and I am thankful for that.<br />
I cherish these days of our first year together and I am so lucky you are my son.<br />
Our family is complete now because of you and I am forever grateful you chose me to be your mom.<br />
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I Love You Kai!<br />
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Love,<br />
Mom<br />
<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com4tag:blogger.com,1999:blog-6273965687130216715.post-12700271481520650762012-04-29T16:21:00.002-07:002012-04-29T16:21:32.318-07:00March For Babies Walk!Yesterday we marched for all those babies out there who were born too early! It turned out to be a beautiful, sunny day in downtown San Jose along side a mini Farmer's Market. It was fun and memorable! Thanks to everyone who showed their support. Here are a few pics from yesterday's event...<br />
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Bracelets passed out to walkers</div>
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Homemade Team Kilo Kai T's</div>
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Quilt square for annual MFB quilts</div>
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Walk Start Line</div>
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com1tag:blogger.com,1999:blog-6273965687130216715.post-47566650121591807602012-04-23T17:25:00.002-07:002012-04-24T12:34:39.293-07:00WOW!Here is Kai at some 2 to 3 pounds last year...<br />
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Here he is today wearing same preemie "outfit" from last year...<br />
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<br /></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com2tag:blogger.com,1999:blog-6273965687130216715.post-62497584872885239382012-04-12T21:17:00.001-07:002012-04-12T21:17:11.011-07:00Back to Back AppointmentsKai had two appointments today--Cardiologist and Ophthalmologist.<br />
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His PDA is still open and very small. Since it is still not affecting him at this time (by growth, development, or illness) the doctor thinks its best to just keep watching it until he is 2-years-old and hopefully it will have closed by then. If it has not closed by two, she recommends a procedure through a main artery to close the hole. This procedure is elective though.<br />
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EKG followed by sonogram </div>
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Today was his first eye exam. They dilated his eyes and checked for near sighted (which he is not!) and for cross-eyes (which he is not!). So not glasses at this time, but he does want to keep his eye exams every six months until he is 4-years-old. He told me that he is simply at risk for needing glasses at any time and may go cross-eyed any time now until around age three or so. </div>
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Almost dilated all the way and I don't think his right eye is 'crossed'...I was three inches away from his face...I'm sure I would crossed my eyes!</div>
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Now that he is crawling, he is well on his way to walking....?? Probably not anytime soon, but he loves to pull himself up on anything!</div>
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com4tag:blogger.com,1999:blog-6273965687130216715.post-68065614710870876582012-04-04T11:07:00.001-07:002012-04-09T09:35:47.074-07:0011 Month Update<div class="separator" style="clear: both; text-align: center;">
I could not wait 4 more days to update...</div>
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Once again another month has flown by and Kai is 11 months! Since the last update, he has been doing extremely well. He really hasn't had any doctors appointments surprisingly, besides when I took him in for his rash on his cheeks and hands which ended up being <a href="http://www.askdrsears.com/topics/childhood-illnesses/fifths-disease" target="_blank">Slap Cheek</a> or <a href="http://www.askdrsears.com/topics/childhood-illnesses/fifths-disease" target="_blank">Fifth Disease</a>. Not a huge deal, just ended up being really uncomfortable for Kai and all we can do is apply oils, ointments, creams, lotions etc. to relieve the itchiness and discomfort.<br />
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He has turned into quit the thumb-sucker as well! Its actually very cute, but takes a bit of a toll on his delicate skin on his hands with all that saliva! Speaking of saliva, he is off is Prilosec! It's definitely a good thing, however his saliva may be slightly acidic because he still has a bit of acid reflux, but not nearly as bad as before. He is still eating about the same amount of solid foods (3 times a day) and same amount of formula and seems to be growing well! He's around 19 pounds and not sure how many ounces and last time he measured in at 28 inches long!<br />
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With RSV season coming to an end, we've been taking Kai out more with us for simple errands and family activities! We recently went bowling and while it seemed loud and overwhelming for Kai, it was still nice to be out as a whole family and have a good time with each other. Here are a few shap shots...<br />
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There is no doubt Kai has been and will continue to develop as any other baby should. He's picked up clapping and will clap while you sing "If You're Happy and You Know It..." or just in random spurts. He loves to play the Bongo drum as well.<br />
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Also, I am happy to say he can officially crawl! At 11 months nearly 8 months adjusted, he's crawling! We are truly so proud of Kai. He is such a strong little dude!<br />
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1st attempt...</div>
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Almost there...</div>
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Got it down...</div>
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Here he is playing with his cousin Sadie...<br />
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And Kirra...<br />
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And Bath Time...</div>
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That will be it for now! As you can see he has been super happy and progressing in so many ways! Thanks again everyone for all your love and support!<br />
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com6tag:blogger.com,1999:blog-6273965687130216715.post-1722357785473407192012-03-05T09:38:00.002-08:002012-03-05T09:38:37.144-08:0010 month update<div class="separator" style="clear: both; text-align: center;">
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Kai is nearly 10 months! (March 8th) It's amazing how time flies. He has been doing really well since recovering from Brochiolitis. He has gained back his weight and then some making him 17 pounds 9 ounces. He was checked out by his pediatrician to confirm that he is doing much better but to keep him on the Pulmicort breathing treatments twice daily then starting in April once daily. He also gave us a back prescription of Albuterol if this happens again as well as a liquid steroid to use for extra emergencies. He had his final RSV shot on Friday until next year! So we should be safe to go out of our isolation more in late April/May!<br />
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As far as eating goes, he still drinks the same amount of formula 5-6 ounces 4-5 times a day with about 5-6 ounces of solids 3 times a day. He does so well with eating from a spoon, it's awesome!<br />
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He can still sit unassisted and roll and pivot around 360degrees, but no crawling yet. He rocks on his knees so I believe he will be able to crawl without a doubt!<br />
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He's been babbling a bunch lately too. Cooing and doing those raspberries (as they call it) with his tongue. He's basically acting like a typical baby!</div>
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Here are a few pictures of what Kai has been up to lately...</div>
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1st Beach Day</div>
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com3tag:blogger.com,1999:blog-6273965687130216715.post-18962189038254272452012-02-20T15:50:00.001-08:002012-02-20T15:53:13.608-08:00Almost Back to Himself Pt. 2<div class="separator" style="clear: both; text-align: center;">
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Kai has definitely turned a corner this morning. He woke up as he use to, lying in bed babbling quietly rather than coughing profusely. He drank his entire bottle of formula (of 6 ounces) and sounded much more clear through the stethoscope. So we will continue with the Pulmicort, morning and night and keep the Albuterol to twice a day or as needed (if its hard for him to breath-retractions). And continue out his Amoxicillin.<br />
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He has been awake more and playing more as well has finished his other bottles today and even had about a tablespoon of Pears! And he was actually interested in eating today, which I have offered him solids since he's been suck, but refusing them completely. So I think its safe to say he's getting back on the right track.<br />
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I'm SO happy and SO proud of him!<br />
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(And he can officially sit unassisted!)<br />
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com2tag:blogger.com,1999:blog-6273965687130216715.post-90785822614023519272012-02-17T14:31:00.000-08:002012-02-17T19:54:13.165-08:00<span style="background-color: white; line-height: 14px; text-align: left;"><span style="font-family: inherit;">If anyone wants to join me in a walk to raise awareness for babies born premature, you can sign up here and </span></span><br />
<span style="background-color: white; font-family: inherit; line-height: 14px; text-align: left;">see who else is walking! Also, I'll need a head count for the t-shirts, they may take a few weeks...</span><br />
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<span style="background-color: white; font-family: inherit; line-height: 14px; text-align: left;"><a href="http://kilokai.blogspot.com/p/contact-us.html" target="_blank">Join The Walk</a></span><br />
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<br /></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com0tag:blogger.com,1999:blog-6273965687130216715.post-24711391556467223592012-02-15T13:18:00.000-08:002012-02-15T13:18:36.429-08:00Sleeping it offKai had a follow up last night with a different doctor since his is an attending doctor as the hospital this week. This other doctor decided to start Kai on Amoxicillin for ten days along with the two breathing treatments and will check on him again tomorrow.<br />
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He's gotten a little better since Sunday. He is keeping his food down, but is not interested in solids so he's just getting a bottle, which is fine because he had lost 5 ounces on Monday and gained 2 back yesterday so formula is better than nothing! He's coughing a little less and sleeping better during naps and bedtime.<br />
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com2tag:blogger.com,1999:blog-6273965687130216715.post-43600775359734566522012-02-13T20:13:00.000-08:002012-02-14T11:12:58.726-08:00Bronchiolitis<span style="font-family: inherit;">Kai hasn't had the greatest weekend and was diagnosed with <a href="http://www.ncbi.nlm.nih.gov/pubmedhealth/PMH0001970/" target="_blank">Bronchiolitis </a>this morning. I guess this along with Croup has been widespread around here lately and the Pediatricians have seen a lot of sick kids this winter.</span><br />
<span style="font-family: inherit;">All we can do is keep up with breathing treatments Pulmicort and added the Albuterol every four hours and a little TLC. I'll keep his blog posted on his status...</span><br />
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<span style="font-family: inherit;">*<span style="line-height: 25px;">What is the difference between Bronchitis and Bronchiolitis?</span></span><br />
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<span style="font-family: inherit;"><span style="background-color: white; line-height: 16px; text-align: left;">Bronchitis is an inflammation of the bronchi. Can effect adults and children. Caused by viruses (influenza) mostly, but can be super imposed by bacterial infection also. </span></span><br />
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<span style="font-family: inherit;"><span style="background-color: white; line-height: 16px; text-align: left;">Bronchiolitis is an inflammation of the bronchioles. It effects mainly children and caused by RSV (50% of the times) or other viruses. Most commonly during winter and spring months. </span></span><br />
<span style="font-family: inherit;"><br style="background-color: white; line-height: 16px; text-align: left;" /></span><br />
<span style="font-family: inherit;"><span style="background-color: white; line-height: 16px; text-align: left;">Bronchi branch in the lungs and give rise to bronchioles.</span>
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com0tag:blogger.com,1999:blog-6273965687130216715.post-25970261830201244952012-02-08T16:20:00.001-08:002012-02-08T16:21:18.223-08:00Development ClinicWe took Kai to his development assessment this morning and it went really well. He was weighed, measured, given a few tests, and a physical examination. <br />
<br />
He's currently 17 pounds and 26 1/2inches long. (I don't remember head circumference). He's in 50th percentile for weight and 75th percentile for height and 50th percentile for head growth all at his 6 month adjusted age. <br />
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The tests they conducted included: visual test by tracking a hanging object, hearing test using a bell which the doctor rang behind him on each side, and a few hands on grasping tests. He passed visual and hearing. He was given objects such as square wooden blocks to grab off a table, which he did. He made him reach and grab a plastic ring that he used to dangle and watch if he would transfer it from hand to hand, which he did. He grabbed small pegs but could not grab a small Cheerio. I'm sure I'm leaving a few things out, but it only took about an hour and a half. <br />
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Overall Kai is acting like a 7-8 month old baby and has no need for any referrals for anything at this time! They want us to work on the small object thing like a Cheerio to hone his fine motor skills and they'll make sure to follow up on his hand tremors they suggested he had as he reaches out for objects. It may be nothing, but they noted it as something to asses at the next appointment that will be in August! <br />
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We were really happy they were impressed with him because we know how well he has been doing. <br />
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<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNMsCiSeCxVBIvwkiZC6YKHcWKVuOthS7t-JfIJfsdveZgIHUY4Chbe60Y61VQ0xesaoLduOifM2hD1A6V3I266fWXSgTiqSzOIrA_GSravKgzL1nlJWGw-4jJxsEQciYXAsKcXJJpXl8y/s640/blogger-image--1988343503.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiNMsCiSeCxVBIvwkiZC6YKHcWKVuOthS7t-JfIJfsdveZgIHUY4Chbe60Y61VQ0xesaoLduOifM2hD1A6V3I266fWXSgTiqSzOIrA_GSravKgzL1nlJWGw-4jJxsEQciYXAsKcXJJpXl8y/s640/blogger-image--1988343503.jpg" /></a></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com5tag:blogger.com,1999:blog-6273965687130216715.post-68058765120353949712012-02-07T12:38:00.001-08:002012-02-07T14:36:14.418-08:00Winter DayKai has been having a great day. He's been enjoying his beauty sleep and has been sleeping in to about 7:00am now. Sorta throws off his mini schedule, but we work around it! <br />
<br />
Today was my first day back at school finishing up my prerequisites for our community college's Dental Hygiene program. I'm very close to completing my prerequisites as well as my A.S. <br />
I'll only be out of the house 2 mornings a week while my best friend and soon-to-be in laws watch the kids. I think it will be healthy to have time apart from the kids only for this short time, so I'm ok with it and I think they are too, since they have fun people to play with while I'm away! <br />
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Anyways, I've been making Kai's baby food and today we're making butternut squash for this nice cold winter day! Overall Kai has been doing ok with eating solids, not great. I think he'll get there and it may take time. I just hope he doesn't develop a complete aversion. He sure does like his bananas in the mesh holder though! <br />
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He has also be siting on his own for longer periods of time now! I'm really happy for him that he keeps getting stronger and stronger! <br />
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Tomorrow is his first big development assessment appointment. I guess these start at his adjusted 6 months. (Or maybe it's for his chronological age of 9 months, not sure). I think it will be full of diagnoses and prognosis (Sp plural ?) <br />
I'll update the blog for sure after that visit!!<br />
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<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiosiAfBYBIrc-t3NICCD4f_BWGKxgUHEj6k2rgOCY7LeEUjeri8l-hS4n3nnEddMcvazYYmDbQ1xWRJWssCK40CNjzGQzWq4ZE3ESqLYBkRGnN97mbJwck2TU46B2ADAFVpyTWMSHuHS2k/s640/blogger-image--1003934799.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiosiAfBYBIrc-t3NICCD4f_BWGKxgUHEj6k2rgOCY7LeEUjeri8l-hS4n3nnEddMcvazYYmDbQ1xWRJWssCK40CNjzGQzWq4ZE3ESqLYBkRGnN97mbJwck2TU46B2ADAFVpyTWMSHuHS2k/s640/blogger-image--1003934799.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjye5C_bnKFvUZreVXUxYvj6BeI6EVzHOYoFvovH1oDpBDAJbtZCyOyIQneng6nMkZdH8H5LwH1eKuLfKuYK3m_j6rx3yDAkhfQ4eDYKdoV_DubR5CbRk7arhsJSTM89yLKR7aTrYokctbN/s640/blogger-image--65096780.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjye5C_bnKFvUZreVXUxYvj6BeI6EVzHOYoFvovH1oDpBDAJbtZCyOyIQneng6nMkZdH8H5LwH1eKuLfKuYK3m_j6rx3yDAkhfQ4eDYKdoV_DubR5CbRk7arhsJSTM89yLKR7aTrYokctbN/s640/blogger-image--65096780.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik4P-XVGoBmKHSctx_TW6nl9YFYrS2Ry9A2-svHv7FzEBrdheTpA84Z5CtN4qHGynb2tuwoqIRzM8B5nSgV-PPs09j2Lrkl9T007cL6RDn0OHHp55ODQOm26yPOV6P3T-OeAimOQTkkreA/s640/blogger-image--1310740740.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEik4P-XVGoBmKHSctx_TW6nl9YFYrS2Ry9A2-svHv7FzEBrdheTpA84Z5CtN4qHGynb2tuwoqIRzM8B5nSgV-PPs09j2Lrkl9T007cL6RDn0OHHp55ODQOm26yPOV6P3T-OeAimOQTkkreA/s640/blogger-image--1310740740.jpg" /></a></div><div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs0e1bstOVvPtoN0lOLf6fuTVs4TLLZGlIY9yZKtxeHm_AUMila0ZCttD2s2f20-CzyLVxiuJL18__HAQrlwlGL26lPo1CQLC5t0s59pak2BB41AVdvcgXpd7amz54o5-EAr3hssoYLsTU/s640/blogger-image--1743448733.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgs0e1bstOVvPtoN0lOLf6fuTVs4TLLZGlIY9yZKtxeHm_AUMila0ZCttD2s2f20-CzyLVxiuJL18__HAQrlwlGL26lPo1CQLC5t0s59pak2BB41AVdvcgXpd7amz54o5-EAr3hssoYLsTU/s640/blogger-image--1743448733.jpg" /></a></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com4tag:blogger.com,1999:blog-6273965687130216715.post-13303546490967768392012-02-01T07:12:00.000-08:002012-02-04T20:32:29.779-08:00Back to himselfSorry it has taken me a while to update on Kai, I guess we left off in the hospital. Well Kai came home a few hours after being watched in Pediatric ward. The day after we saw his pediatrician and he wants Kai to continue breathing treatments of Pulmicort twice a day. Since then he's gotten a lot better. He still has a lingering cough and runny nose, but they said those may last another week or two and the runny nose could even just be from teething.<br />
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Kirra ended up getting sick as well, but she's handling it well. I think she sort of likes the attention she gets from being sick because she's never sick and she's been sleeping with me while Adam is out of town :) <br />
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Other than that Kai is still doing really well. He has a cranial sacral therapy session today and Synagis shot on Friday. He's still feeding really well and we've lengthened the intervals to 6-7oz of formula every 4 hours with cereal in afternoon. I also got him Sassy Teething Feeder (same brand I used for Kirra when she was Kai's age) and gave him a banana and he loved it! I'm really excited to start giving him easy fruit like this, he did a really good drop chowing it down.<br />
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<div class="separator"style="clear: both; text-align: center;"><a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTcE_hY2L4mkVwJkxz4l3m8i46gRTr3D327SWPVGyBdOLw7Dbk2NGH5-DP8RxCKD7pj_X-VNbMuTSO1rVlSdBLTb-8w1TiOJDSzoUyLS4t9aNZQGbP8ZNR-V6cd-WD6rVrCs5BKybepjTD/s640/blogger-image--2059872480.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgTcE_hY2L4mkVwJkxz4l3m8i46gRTr3D327SWPVGyBdOLw7Dbk2NGH5-DP8RxCKD7pj_X-VNbMuTSO1rVlSdBLTb-8w1TiOJDSzoUyLS4t9aNZQGbP8ZNR-V6cd-WD6rVrCs5BKybepjTD/s640/blogger-image--2059872480.jpg" /></a></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com1tag:blogger.com,1999:blog-6273965687130216715.post-82187976302446567542012-01-26T01:08:00.000-08:002012-01-27T07:30:08.339-08:00"Never Trust A Preemie"<br />
So we had a late night last night at Dominicans ER. Kai had woken up in the morning with a nasty cough and runny nose that didnt seem too bad at first, but still took precautionary measures and spoke with his Pediatrician. I explained that he had runny nose (no green snot), hoarse cough, no fever, and seemed to be eating fine. He told me I could bring him in if I wanted to have him seen, but I decided to stay home with him and see if it wouldn't get any worse. So i was then instructed to keep suctioning his nose, use the humidifier, and use saline drops. His doctor thought it may have been common cold, but if breathing got worse I had to bring him in. So i did all of that except i did not have a filter for the humidifier so I used the shower and closed the door. And gave him a nice warm bath after. <br />
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He was about the same all day, sleepy, runny nose, and cough until bedtime. He started coughing a lot more and had a hard time catching his breath. So I decided to just take him in the ER (10pm) even if it was just a common cold. <br />
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After about 2 hours, we saw a doctor and immediately said he has Croup Cough. I was a little surprised, but sort of glad he pin-pointed his symptoms. <br />
Kai received breathing treatment of something with epinephrine and a steroid shot (I forget the name. This was at 1am) then another breathing treatment of Albuterol then a nasal swab to test for RSV, then another dose of epinephrine since he want showing signs of getting better. At about 4am they took an X-ray of his chest in this horrible looking contraption that I had to assist restrain him in. Looked like this<br />
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The RSV test came back negative and X-ray looked good. He started to sound a little better, but his O2 saturation were fluctuating a bit so they wanted to keep an eye on him so he was admitted to Pediatrics. <br />
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6am now and he's had some milk, clean diaper, and fresh clothes. Now the doctor wants a blood test, CBT to rule out infections. <br />
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It's 8am now and we're still here just hanging out resting until he's stable enough to be at home. <br />
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A nurse in the NICU once told me "never trust a preemie". Well technically Kai is an Ex Preemie, but he still has these days where he's completely fine then out of nowhere is instantly sick. "They play tricks" she said, it was Grace, the Respiratory Therapist. But this is most definitely not his fault. <br />
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I was sitting in that awful ER questioning myself, how did this happen? We were doing our RSV isolation with exception of doctors appointments, walks outside and occasionally going to other family members houses so, what went wrong?! It's frustrating because he fought so hard for those 105 days that I don't want him to be sick anymore. I know this is not the most awful sort of sickness he could have, but he's still sick, and for Ex Preemies that is dangerous. I just hate seeing him like this, looks like it hurts. <br />
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Anyways we'll be here. And he's still a happy little boy too. I'll keep you guys posted. <br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5qYlVto64tUBI4QGt6ljpgO3UMYUQ6dHk11RQxJ7ia8S3WqErf3wSLvhn9ZJffrdSyVNF29_ta5VvDxuTAm273EubiTsJ0pSPItkMnQ9jmdJYz1fis6NdWUi2JahpQsgr2DAEOJhV5GIk/s1600/photo+%25283%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEj5qYlVto64tUBI4QGt6ljpgO3UMYUQ6dHk11RQxJ7ia8S3WqErf3wSLvhn9ZJffrdSyVNF29_ta5VvDxuTAm273EubiTsJ0pSPItkMnQ9jmdJYz1fis6NdWUi2JahpQsgr2DAEOJhV5GIk/s320/photo+%25283%2529.JPG" width="320" /></a></div>
<br />
Kai had an appointment with his OT yesterday and she was impressed with his rolling ability, grasping, transferring toy between hands, head control, and overall strength that she decided Kai no longer needs her services! So awesome to know that he is fine without the help of an occupational therapist. She said if he was having difficulties with his solid feedings next month, we can see her for help on that, but she has faith he won't need to see her again. Very bittersweet.<br />
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His current weight is still 16lbs. 7oz. I'm positive his lack of gaining weight this last month or so is due to all this extra cardio he's getting in with rolling around and tummy time.<br />
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His GI doctor had us experiment this week by having Kai go cold turkey off his Prilosec medication to see if he has acid reflux symptoms still and after just 3 days off, the reflux clearly is still present. And this is fine, babies (preemie or not) can have acid reflux up to one year or more. So I started him back on his Prilosec so he's not so uncomfortable. We will see his GI doctor on Monday.<br />
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Other than that not much else is new here!<br />
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But I thought I'd share these cute father & son photos.<br />
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com2tag:blogger.com,1999:blog-6273965687130216715.post-54126734403287562852012-01-15T14:53:00.000-08:002012-01-15T14:54:15.400-08:00I'm So Proud of You KAI!Here we are again practicing rolling over to opposite side, left to right. Kai has been favoring trying to roll from right to left so we've been working on going the other way today. Here are a few clips we have from today's hard work...<br />
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Trying so hard </div>
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Kirra's help...but really she thought he was going to hurt himself so she tried to catch him</div>
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Kirra and I traded roles</div>
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And Finally we have a winner!</div>
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(It may look as if I helped him, but I was moving a toy)</div>
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He has been doing awesome these past couple of days so I'm trying really hard to encourage him. I also removed that blanket he had aiding in his leverage last night. I'm so proud of my sweet boy!!!</div>
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<br /></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com1tag:blogger.com,1999:blog-6273965687130216715.post-63747089484128224982012-01-14T20:01:00.000-08:002012-01-14T20:04:17.949-08:00Practice, practice, practiceHere is Kai's most current roll. I put a blue blanket under the upper part of his body to assist his roll, but it's very minimal cushioning, but I'm sure he can't do this quite yet without a tiny bit of help...<br />
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He'll just keep practicing!</div>
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com3tag:blogger.com,1999:blog-6273965687130216715.post-34235262667694066272012-01-10T09:06:00.000-08:002012-01-10T09:06:02.469-08:00We're Still HereI apologize for another week going by without any updates. I am so happy many of you are still following Kai 8 months later. Yep, he's 8 months now!! It's very crazy to think its been that long and its also crazy to think that just two months from now a year ago I started bed rest with this sweet child.<br />
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Anyways, Kai has been truckin along with everything. He is officially out of his sleep-all-day-baby phase and takes two solid naps during the day and still sleeps through the night. So since he's always awake now he has been getting in a lot more tummy time as well as more practice time for rolling, sitting, and just playing. He's really strengthening his trunk muscles with all this "working out" because I can hardly leave him in his bouncy seat for more than a few a minutes because he starts to sit up in it!<br />
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He has been so chatty as well. He loves to look at faces and talk while gazing into their eyes. His favorite by far is Kirra. Its so sweet. </div>
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He also prefers to be moving around. I always expected him to not be "normal" and to just be immobile, which is a terrible thing to think, but when trapped in a NICU for so long its hard to see the future and think nothing will be wrong. Kai has completely amazed me and our family.</div>
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He's nowhere near 'vegetable' as once described could happen to him simply from being so sick for so long. He loves to sit on my leg and bounce up and down with his legs and pretty much can't sit still. I love it! </div>
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He still can't roll over, but I think he's almost there! I so believe in him and I can tell he'll be rollin in no time. </div>
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The OT (Occupational Therapist) that he has been seeing every other week has decided to see him once more for the last time (as of now). It's pretty exciting because she thinks he is doing so well that her services are almost pointless. Next month however, when he turns 6 months adjusted, he will be assessed at the High Risk Infancy Clinic here in Santa Cruz to see how his progress is and what his problem areas might be. From there his pediatrician will refer either back to OT or PT and so on. He still sees a PT, but mainly for the Cranial Sacral treatments and we pay for those not his insurance. So if he sees an additional PT through a referral we won't have to pay for that, but we'll keep the Cranial Sacral sessions going separate. </div>
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His reflux is still under control as well. He takes 4mL of Prilosec still and is a "happy" spit up baby. Meaning it doesn't hurt since his stomach acid is neutralized. However, the GI wants to see him in a few weeks and see how he does off the Prilosec for one week prior to his appointment to determine any lingering symptoms. It will be interesting to see since he will be starting solid foods around that time and since the food is heavier than milk, the stomach would have a harder time allowing the food to come back up. He is still taking Miralax as well (stool softener) and GI thinks he'll be using it for a long time. </div>
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As far as health goes, he's been great! No concerns as of now. We stopped the Pulmicort because his symptoms are no longer present and its completely ok with his pediatrician. Pulmicort is a steroid and like everything else has adverse side effects so its better to use in moderation and when needed in babies so young. Plus, I'm pretty sure those initial symptoms he was having with the wheezing may have also been caused from aspirating stomach acid because he was on too low of a dose for his weight at that time. Reflux can also affect the respiratory system so it<i> may not </i>have been the 'cold air'. We won't really know, but we know now he's clear! </div>
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He's updated on all his shots including the Flu shot and only has two more <span style="font-family: inherit;"><a href="http://pediatrics.about.com/od/rsv/a/1006_synagis.htm" target="_blank"><em style="background-color: white; font-style: normal; line-height: 16px; text-align: -webkit-auto;">Synagis</em> </a></span>shots left! But since he's over 16 pounds his last two will actually be double shots :( poor big boy. </div>
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Thanks for stopping by and I hope I filled everyone in well enough! </div>
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<br /></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com2tag:blogger.com,1999:blog-6273965687130216715.post-81053187247323369892012-01-03T08:24:00.000-08:002012-01-03T08:25:15.922-08:00<div class="separator" style="clear: both; text-align: center;">
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It's been one week since we started giving Kai rice cereal and he is still doing great! We will not be giving him anymore cereal than he is getting now. He will continue to only have it between his 12:00 and 3:00 bottle. I've also mixed his probiotic powder in the cereal as well since it's not suppose to go in his bottle feeds. So all he is getting in total is about 1 tablespoon of cereal/probiotic/formula mix once per day. We don't want to go crazy and start giving him pureed food just yet. He's almost 5 months adjusted so we will probably start pureed food in early February and see how he tolerates it.<br />
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Other than that Kai is still amazing!<br />
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com3tag:blogger.com,1999:blog-6273965687130216715.post-81396684434562405982011-12-26T17:50:00.000-08:002011-12-26T18:39:17.222-08:00First Food<span style="font-family: inherit;">Today we tried giving Kai his first bite of rice cereal! He has been showing some of the signs such as:</span><br />
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<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Can hold head up</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Sits well in Bumbo chair</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Makes chewing motions</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Shows significant weight gain (birth weight has doubled)</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Shows interest in food</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Can close mouth around a spoon</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Can move tongue back and forth, but is losing tendency to push food out with tongue</span></li>
<li style="margin-bottom: 0px; margin-left: 0px; margin-right: 0px; margin-top: 0px; padding-bottom: 0px; padding-left: 0px; padding-right: 0px; padding-top: 0px;"><span style="font-family: inherit;">Is teething</span></li>
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<span style="color: #40463c;">I only tried a small amount and will try this once per day for now...</span></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiT-wgQaLKUteoi7O6GIOgeitewHaT-W9L525ZVK1k2hogghE-sq19G7RcwDitew5xXq_K0XhS369GB8_cbkz2IMUGaNLZpsEeiKu-NNCsCP7MevR5dIssC4hIwcY4sjuqPSft5Er1-7h2H/s1600/006+%252835%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEiT-wgQaLKUteoi7O6GIOgeitewHaT-W9L525ZVK1k2hogghE-sq19G7RcwDitew5xXq_K0XhS369GB8_cbkz2IMUGaNLZpsEeiKu-NNCsCP7MevR5dIssC4hIwcY4sjuqPSft5Er1-7h2H/s320/006+%252835%2529.JPG" width="320" /></a></div>
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1 tsp. of this </div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpm_xbcbAReeaEWvE9RwjRCDJkylIZmZfyIQZdqSPM2fnjxXla6NtObnKDbdECm_MdxUcAFUyCRIVEbgkUBLlFpisg0B_bnrv5GAeD5t83XQew4i_JOHoL0OOlxj8LEpr0MduxHq818HoN/s1600/007+%252831%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhpm_xbcbAReeaEWvE9RwjRCDJkylIZmZfyIQZdqSPM2fnjxXla6NtObnKDbdECm_MdxUcAFUyCRIVEbgkUBLlFpisg0B_bnrv5GAeD5t83XQew4i_JOHoL0OOlxj8LEpr0MduxHq818HoN/s320/007+%252831%2529.JPG" width="320" /></a></div>
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4 tsp. of this (already mixed with water)</div>
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<a href="http://3.bp.blogspot.com/-D_YwcaTcp-w/TvkWZ1iIAdI/AAAAAAAAAhU/2-CT5vA6jVo/s1600/food.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="233" src="http://3.bp.blogspot.com/-D_YwcaTcp-w/TvkWZ1iIAdI/AAAAAAAAAhU/2-CT5vA6jVo/s320/food.jpg" width="320" /></a></div>
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Mix</div>
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<a href="http://4.bp.blogspot.com/-0B9ma21WyZ8/TvkWgbO9i_I/AAAAAAAAAhg/bU3WckEELmE/s1600/014+%252817%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="http://4.bp.blogspot.com/-0B9ma21WyZ8/TvkWgbO9i_I/AAAAAAAAAhg/bU3WckEELmE/s320/014+%252817%2529.JPG" width="214" /></a></div>
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Spoons up!</div>
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And open up...</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihQV0cOFGv7f-89VsSx5JxTen_4mRJqiQiwt7WkhHSk_082Se4whFVbXEUyLlMNBe8i7NsXywl-ADz3PWTgD9swORHXGrFb2aPiB1P8sw2r8CVFLpSZzDarhvaYg123qJ1tuEpUmhfa6ft/s1600/011+%252824%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEihQV0cOFGv7f-89VsSx5JxTen_4mRJqiQiwt7WkhHSk_082Se4whFVbXEUyLlMNBe8i7NsXywl-ADz3PWTgD9swORHXGrFb2aPiB1P8sw2r8CVFLpSZzDarhvaYg123qJ1tuEpUmhfa6ft/s320/011+%252824%2529.JPG" width="320" /></a></div>
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And he's spent...it was a success</div>
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<br /></div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com1tag:blogger.com,1999:blog-6273965687130216715.post-85586567214782320632011-12-26T16:12:00.000-08:002011-12-26T16:12:31.627-08:00<div style="text-align: center;">
Hope everyone enjoyed their Christmas weekend! We sure did...</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHfKLpqYKnn9RwYND68-dEz5bg3qeaeTNxqSCNSxKHFafUBTnnH5me9SWCc-jnM8_G2Mr7JqwqBdOhjaESdVnsiOoZO0xj6KzdYxDG6cbd6r0j8KQCq_sT3ZWqp668QWeHSa1be6kR5vpV/s1600/sanat+suit+small.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="400" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgHfKLpqYKnn9RwYND68-dEz5bg3qeaeTNxqSCNSxKHFafUBTnnH5me9SWCc-jnM8_G2Mr7JqwqBdOhjaESdVnsiOoZO0xj6KzdYxDG6cbd6r0j8KQCq_sT3ZWqp668QWeHSa1be6kR5vpV/s400/sanat+suit+small.jpg" width="266" /></a></div>
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P.S. I've been updated the <a href="http://kilokai.blogspot.com/p/photos.html" target="_blank">Photos </a>tab as well as the <a href="http://kilokai.blogspot.com/p/what-kirra-is-up-to.html" target="_blank">What Kirra Is Up To tab</a>--check them out! :)</div>
<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com0tag:blogger.com,1999:blog-6273965687130216715.post-10198611595758847322011-12-24T08:12:00.000-08:002011-12-24T08:12:32.359-08:00Merry Christmas!<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9gPJJMiEsfRXgLvCoXNjocTLD5ZiqewPXKPku_kLN3lrsfrhG2LEFVx8v7v2-Aytloe2g30OGeW7ul6qTImPiAQBM12ziUztvJqhoeJTec-6F916FpR_Cj44mTHNmebZTVdXj7pE5gwrt/s1600/1.png" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="227" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg9gPJJMiEsfRXgLvCoXNjocTLD5ZiqewPXKPku_kLN3lrsfrhG2LEFVx8v7v2-Aytloe2g30OGeW7ul6qTImPiAQBM12ziUztvJqhoeJTec-6F916FpR_Cj44mTHNmebZTVdXj7pE5gwrt/s320/1.png" width="320" /></a></div>
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From our family to yours, we hope you have a wonderful Christmas and a great New Year! </div>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com3tag:blogger.com,1999:blog-6273965687130216715.post-61936669272652768062011-12-14T22:13:00.000-08:002011-12-14T22:32:47.971-08:00Sammi The SealKai started his respiratory treatments today. He didn't seem to mind getting his medication through his cute nebulizer...<br />
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggZ9hZUE370xHpv1tClDz1Zy7IJN4rJHsQ4nrMgkISOQfEFD2whTmT35ZZ-OYNnnjvB-aEqBZxT0G9_im3-rHthgg84wjvQUTVSJmL8bDw_Zavr_MRI1Jcmam1IhllrNW5HOvI9bMVnxnN/s1600/007+%252830%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEggZ9hZUE370xHpv1tClDz1Zy7IJN4rJHsQ4nrMgkISOQfEFD2whTmT35ZZ-OYNnnjvB-aEqBZxT0G9_im3-rHthgg84wjvQUTVSJmL8bDw_Zavr_MRI1Jcmam1IhllrNW5HOvI9bMVnxnN/s320/007+%252830%2529.JPG" width="320" /></a></div>
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<i>Sammi the Seal</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYySKC3yjiLb21IaYFWtHvCtmryp1HzC5lQzQ5AteadYcqyDjSkAzfZKhrNVtR8Su5JXkQJGJI8jB56raoj5TxJ6rp0NUkEuyDjEWkzOsSg7xBC0RYDqLYTO-g8JzPelhjsL8qMrfcV7qa/s1600/003+%252849%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgYySKC3yjiLb21IaYFWtHvCtmryp1HzC5lQzQ5AteadYcqyDjSkAzfZKhrNVtR8Su5JXkQJGJI8jB56raoj5TxJ6rp0NUkEuyDjEWkzOsSg7xBC0RYDqLYTO-g8JzPelhjsL8qMrfcV7qa/s320/003+%252849%2529.JPG" width="214" /></a></div>
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Ready for Round 1</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb_CqZp7F7DJh12OvQo7G4HMpXWRdDZPuX7e4HLsKlpinuGyXXf8PpUCQrCkS9cqC98FKMgchKLmXZb9DlQNYb5Rd62a7PqBwz3UvAXN6pI1JhtYRHxEuksIZ62ZXvBuX5gf98JsK8X7-c/s1600/004+%252839%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEhb_CqZp7F7DJh12OvQo7G4HMpXWRdDZPuX7e4HLsKlpinuGyXXf8PpUCQrCkS9cqC98FKMgchKLmXZb9DlQNYb5Rd62a7PqBwz3UvAXN6pI1JhtYRHxEuksIZ62ZXvBuX5gf98JsK8X7-c/s320/004+%252839%2529.JPG" width="320" /></a></div>
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<i>And this is Tucker the Turtle</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_8WOdP24Ex8rH4rDJmw-gzVV1pEjomOq50DM6ivBTAeM6UgH5KpKGy3RD2lC5_nGGPRVN64sDXOUFea76VJuev8mKsjHxhmrp2SGu70hC61Yl9m6A2SC5XkH188QefrAk-0A4uEmRdgxs/s1600/006+%252833%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh_8WOdP24Ex8rH4rDJmw-gzVV1pEjomOq50DM6ivBTAeM6UgH5KpKGy3RD2lC5_nGGPRVN64sDXOUFea76VJuev8mKsjHxhmrp2SGu70hC61Yl9m6A2SC5XkH188QefrAk-0A4uEmRdgxs/s320/006+%252833%2529.JPG" width="320" /></a></div>
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We also let Kai have one of his Christmas presents early since he's been such a WONDERFUL boy!</div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG6KaIo699ZM_OLq2BO0G4kOXg7Gr5L-gHlLdiaGhqAgaUXO7wYUA-lFy-71ZqhDVsfrLMUWRbhyphenhyphenx1X7BL-z-kHCosn3_RjgoWOlqRfVsIP7rkfHZw-Y-A-YYiFUZC25rRIHvyxm93Lq2L/s1600/011+%252823%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEgG6KaIo699ZM_OLq2BO0G4kOXg7Gr5L-gHlLdiaGhqAgaUXO7wYUA-lFy-71ZqhDVsfrLMUWRbhyphenhyphenx1X7BL-z-kHCosn3_RjgoWOlqRfVsIP7rkfHZw-Y-A-YYiFUZC25rRIHvyxm93Lq2L/s320/011+%252823%2529.JPG" width="214" /></a></div>
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<i>Bumbo</i></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5NTkKpzGIIWbdPQ1Bjp9yVQClP5kiDR4YLJtRYB-0dfb_eSQXD_US1BZQQQ2Jbug2vknHE-MvXyaTh7ubls45ozIRtG3KwtQ6RrcmJ3nqEkN_hBKwXjOqeOClL-LkNPnsquTZmy0LZKMH/s1600/014+%252815%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="320" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEg5NTkKpzGIIWbdPQ1Bjp9yVQClP5kiDR4YLJtRYB-0dfb_eSQXD_US1BZQQQ2Jbug2vknHE-MvXyaTh7ubls45ozIRtG3KwtQ6RrcmJ3nqEkN_hBKwXjOqeOClL-LkNPnsquTZmy0LZKMH/s320/014+%252815%2529.JPG" width="214" /></a></div>
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<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5tDccESgFiZ1mgerB99YcqZD-EFrpfjn_cuZFAkXVijxjsUL6jUi215N4UydZR3FSuFavecNbp7rv-cLucpz3Wdwbpl2lLE3z51EAfR5vyWJzrleOHcxjdJK20vX4mlaY_8n-2cayGbmW/s1600/022+%252811%2529.JPG" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="214" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEh5tDccESgFiZ1mgerB99YcqZD-EFrpfjn_cuZFAkXVijxjsUL6jUi215N4UydZR3FSuFavecNbp7rv-cLucpz3Wdwbpl2lLE3z51EAfR5vyWJzrleOHcxjdJK20vX4mlaY_8n-2cayGbmW/s320/022+%252811%2529.JPG" width="320" /></a></div>
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He really enjoyed his new blue seat. He likes playtime so I think this is a great addition and perfect timing to start using. </div>
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Kai is still going to OT every other week and PT (Cranial Sacral) opposite week of OT. Yesterday his OT was once again impressed with his progress. Not that he has been doing a whole lot more, but the fact that he's just simple "able" to do/try the exercises without complication. So what we will be working on now is crossing his midline with opposing hands reaching for toys. He's always been able to put a toy straight to his mouth once in hand, so now he needs to reach for it in a sitting motion. He somehow manages to get a toy in front of him while doing tummy time. We are still practicing rolling, but he hasn't done it on his own yet. We stretch him much less than before now, but still enough here and there to get him out of his comfort zone (especially out of his minor left should torticollis) Still doing massages on his arms and legs after baths. Still doing mini pull ups (which he is a pro at). I'm not really sure what else he does that he "needs" to be doing for a 4 month old because his doctor believes as long as he reaches milestone eventually he is fine. So he hasn't been testing to see if he's been acting age appropriate really at all (for his adjusted age; 4 months).</div>
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I also forgot to mention that he did receive his flu vaccination with his 6 month round last month so this Friday he's due back for his booster and a quick chat with his Pediatrician about this wheeze.</div>
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com1tag:blogger.com,1999:blog-6273965687130216715.post-33950973470385205562011-12-10T10:27:00.001-08:002011-12-10T12:37:02.541-08:00Cold Air<div class="separator" style="clear: both; text-align: center;">
<a href="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOcK5XVjFkpywdjm-BI_o6KJANm_3IZTo1VvIT1jwq0dsxYgICvIfVxbzguAbXjeIDWDLz7Q4NMjHynAUlm0aCUnW6frkRuNx-v-qwXFbn0_D9GT3Y5YFG223cc1QApL_J3_hJGQdMfD-E/s1600/kilo+logo.jpg" imageanchor="1" style="margin-left: 1em; margin-right: 1em;"><img border="0" height="284" src="https://blogger.googleusercontent.com/img/b/R29vZ2xl/AVvXsEjOcK5XVjFkpywdjm-BI_o6KJANm_3IZTo1VvIT1jwq0dsxYgICvIfVxbzguAbXjeIDWDLz7Q4NMjHynAUlm0aCUnW6frkRuNx-v-qwXFbn0_D9GT3Y5YFG223cc1QApL_J3_hJGQdMfD-E/s320/kilo+logo.jpg" width="320" /></a></div>
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<span class="Apple-style-span" style="font-family: inherit;">Yesterday Kai met with a Pulmonologist at Stanford. He was referred by his pediatrician because Adam and I had noticed a little wheeze when he breaths. The doctor determined he does have a slight wheeze when he exhales which is most likely due to this cold air. Although he is not sick the doctor still wants to treat him with two different medications which he had while he was in the NICU. He prescribed him Pulmicort and Albuterol to inhale through a nebulizer. He wants Kai to start with Pulmicort 2 times a day for the next two months until the doctor sees him again.</span><br />
<span class="Apple-style-span" style="font-family: inherit;"><br /></span><br />
<span class="Apple-style-span" style="font-family: inherit;">He said because Kai was born with RDS (Respiratory Distress Syndrome) and also experienced extremely low amounts of amniotic fluid while in utereo, he will be at risk for Pulmonary Hypoplasia.<span class="Apple-style-span" style="background-color: white; line-height: 18px;">Pulmonary Hypoplasia (P-Hyp) is the failure for lungs to develop in-utero. This often afflicts only one lung. Basically, the lungs do not have sufficient tissue and blood flow to adequately perform the oxygen/carbon dioxide exchange that the body requires to function. While in utero, Kai experienced p</span><span class="Apple-style-span" style="background-color: white; line-height: 18px;">rolonged oligohydramnios, where there has been long-term deficiency of amniotic fluid, the lack of development of kidneys, and premature rupture of the membranes. (The doctor also asked about his kidneys because that was a concern as well. A few days after Kai was discharged from the hospital we went back for a kidney ultrasound and never heard results from it. Well the doctor yesterday looked up the results since all of Kai's info is in Stanford's database and it said he had an "unremarkable" ultrasound with no areas of concern! Wow that's awesome! No wonder we never got a phone call.) </span></span><br />
<span class="Apple-style-span" style="background-color: white; line-height: 18px;"><span class="Apple-style-span" style="font-family: inherit;"><br /></span></span><br />
<span class="Apple-style-span" style="font-family: inherit;"><span class="Apple-style-span" style="background-color: white; line-height: 18px;">Anyways, a d</span><span class="Apple-style-span" style="background-color: white;"><span class="Apple-style-span" style="line-height: 18px;">efinitive diagnosis of Pulmonary Hypoplasia can only be made through an autopsy, so diagnosis is really a strong suspicion and based on clinical presentation along with historical factors. Either way he still has Chronic Lung Disease which I was told is not so "chronic" but more </span><span class="Apple-style-span" style="line-height: 18px;">acute meaning short lasting through his "baby years". It's sort of hard to explain. There are many malformations that can happen with lungs when born so premature simply because they were nowhere near fully developed. In closing the doctor basically told me to be aware of any other symptoms noticed that are respiratory related. Kai's lungs are the most important factor in his health as of right now. </span></span></span><br />
<span class="Apple-style-span" style="background-color: white;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: inherit;"><br /></span></span></span><br />
<span class="Apple-style-span" style="background-color: white;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: inherit;">Additionally everything else is checking out great for Kai! This doctor whom we've never met before was just as impressed with his progress as all the other doctors have been since he's been home. His current weight is 14 lbs 10oz and 25 in at 7 months old. He falls into the 50th percentile for height and weight for a baby at his corrected age (almost 4 months) but of course below 5th percentile for his actual age. </span></span></span><br />
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<span class="Apple-style-span" style="background-color: white;"><span class="Apple-style-span" style="line-height: 18px;"><span class="Apple-style-span" style="font-family: inherit;"><br /></span></span></span>Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com0tag:blogger.com,1999:blog-6273965687130216715.post-11166283036525595362011-12-02T15:08:00.001-08:002011-12-10T10:55:27.873-08:00Walk With Us!Dear Friends & Family,<br />
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Our family is walking in March for Babies on Saturday April 28, 2012 at 9:00am in San Jose (exact location TBA). We’re proud to be helping the March of Dimes by walking together for stronger, healthier babies.<br />
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Team Kilo Kai is walking in celebration of Kai, who was born at 26 weeks nearly 3 1/2 months early. The March of Dimes works to understand and prevent the problems that threaten our babies and supports local programs that help women have full-term pregnancies and healthy babies. 75% of their donations are used to actually support these programs (75% is a large percentage for a fundraising organization!)<br />
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We want to help, and I’m asking you to help, too. Together we can do so much more. When you sponsor me in March for Babies, you make a difference in the lives of babies and their families — right here in Santa Cruz and across the country.<br />
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I want to invite you to walk with me on March for Babies day. You can join the team on our fundraising page <a href="http://www.marchforbabies.org/team/t1759984">http://www.marchforbabies.org/team/t1759984</a> Just click on JOIN THIS TEAM button and it will walk you through each step! I also created a tab under this blog titled ><a href="http://kilokai.blogspot.com/p/contact-us.html" target="_blank">Join the WALK</a>< Each walker will specify a desired amount of money to raise on their own. Check out what goals I have set for TEAM KILO KAI! I will also provide each walker with a team t-shirt in remembrance of this day of giving back.<br />
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<span class="Apple-style-span" style="background-color: #ffe599;">**You do not need to make a donation to sign up and walk**</span><br />
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If you want to learn more about March for Babies and the March of Dimes, there’s great information on marchforbabies.org and marchofdimes.com.<br />
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I'm very excited to be a part of March for Babies this year and hope you will join my team!<br />
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Thank you for helping me give all babies a healthy start!<br />
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Please walk with us! :)<br />
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<br />Anonymoushttp://www.blogger.com/profile/00466445859362284608noreply@blogger.com0